EURORDIS

We are proud to be partners with EURORDIS – the voice of Rare Disease Patients in Europe. Every year we will be raising awareness of inflammatory breast cancer (often referred to as the ‘orphan’ type of breast cancer) and Rare Disease Day which takes place during the month of February.

Who is EURORDIS?

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 988 rare disease patient organisations from 74 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.

By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.

Vision & Mission

EURORDIS-Rare Diseases Europe works across borders and diseases to improve the lives of people living with a rare disease.

Achievements

EURORDIS is widely recognised in Europe for its achievements and as a main partner working with the European Commission, the European Parliament, the Council, the European Medicines Agency, and several others.

For more information on EURORDIS, please visit their website.